My sister's suggestions .

My sister's suggestions : 

Ask the doctor to draw simple diagrams and flow charts for you to explain some of the complex issues. It is much simpler and to my mind, far more effective and easier to understand than listening to words alone and taking notes.

You know the type of chart I mean. The one where there is the central topic = in your case the TURB = with arrows and options leading up to it and ones leading out of it. Further arrows, treatments and options with "If this happens go here and if this is the result go there".

The second piece of advice to you would be, take two people with you if necessary. One person to empathise with you and take care of the weepy moments and another who is less detached, who is rational, objective and who can ask challenging questions on your behalf and if necessary, take brief notes themselves.

If all your friends are too emotionally attached themselves to be the 'rational' one, then there might be someone available from the Health Service you could utilise or from a charity. Ask your GP or hospital staff about what services are available. I do not know the system in Sweden and I do not speak the language so it is difficult for me to gather such information. *

* I am learning about the Swedish system as I go along , and I must say it is not easy . Four hospitals are involved in my case. I have 'a team ' but so far it has been extremely difficult to pin someone down to explain test results and the BIG PICTURE.  My intention is ,  by hook or by crook , to pin a consultant down and arrange a meeting after this TURB operation. I will make sure that a couple of friends are there with me ,